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photo:2005
hi, my name is jonathan gordon. I was diagnosed with a glioblastoma multiforme grade 4 in october 2001. I was treated with surgery and radiotherapy in the western general in edinburgh. After the swelling in my brain had gone downfrom the rt, i flew out to wellington,nz. My parents were working/living out there at the time. I was refered to an oncology specialist who saw me every 3months and helped me with the dexamethasone iwas,and still am, taking. During the 2.5 years i was there, my tumour slowly got smaller until the last ct scan showed it had gone. I flew back to scotland with my parents and my 2 jack russells in sept 2004...since my arrival to th uk, my tumour has grown again. I started chemo, ccnu, on the 22nd dec 2004.
During my time in NZ, i took a variety of cmplimentary medicines, went to support grps at the wellington cancer soc, and even entered a cancer dragonboat team, called cansurvive. i feel this all helped fight the cancer.
I continue my battle, here in finzean, scotland. I still get very tired.I am in bed for 12hrs at night and 1hr in the afternoon. It appears that my tiredness is due to adreanal supression, which is caused by long term dexamethasone use. They say the ccnu can make you tired as well. I continue to take all my vitamins , which are all mentioned in interesting info . I am still confident i can beat this cancer.
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